Hereditary Multiple Exostoses Support Group

UK Registered Charity Number 1091069
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Affiliated to Contact a Family


PLEASE NOTE, SECTIONS OF THIS SITE ARE STILL UNDER REVISION.

WE THANK YOU FOR YOUR CONTINUED PATIENCE.





Welcome to our new site


We hope you find our new web site useful, friendly, and easily accessible. Our web site is very informative and contains an abundance of helpful topics for you as an individual and as a parent.

The HME Support Group provides accurate and up to date information and the many aspects of living with the condition on a daily basis.

Our support group is a great aid to those families who have been recently diagnosed and as a constant source of comfort to long-term sufferers. The effect on the whole family can be stressful at times and the Support Group is there to help alleviate some of your feelings by sharing them with other families in similar situations geographically. Children and their parents often find that what they need most is contact with others in the same situation. When you join our support group, we can offer you a network for social contact with people who share the same interests and concerns.

Have a good look around our new web site. I would be interested to hear your thoughts on it and would welcome any ideas for future content using our feedback form.


Christine Spencer
CHAIR




Would you like to join the Group?

 

One of our young members Shakila has put together a Facebook profile for the HME community, if you would like to view the group or join in please click here

 

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