My Brother has got HME I am Robert Searle's sister and my name is Roxanne. I am nearly 6 years old on the 9 August. I do not have HME, but it is sad for me too when Robert has operations. I try to cheer him up when he is sad. I took a Pikachu balloon into hospital a few weeks ago, he laughed, he liked him. The good thing about the HME group is that we are all like one big family and I love the picnics we go on. Please try to come and meet me at the picnic on 3rd September. Mum says 'don't forget, put it in your diary now'. Is there anyone that can write to me and tell me their story about what it is like to have a brother or sister with HME? If there is write to me through the newsletter.     Love Roxanna.

Exostosis is really annoying especially if you live in Preston and you have to go to Sheffield every 6 months. Sometimes it can be fun because I get sweets and a day off school! The second time I went I saw a French doctor, and I couldn't understand him and my mum had to be the translator and tell me what he was saying. Before we went he wanted to measure by body. He was asking me to sit against the wall with my back straight. He kept telling me to stand up then when I stood up he said "no sit down", so I spent 15 minutes trying to do what he said! But I finally did it, it was funny, what he was trying to tell me was to sit up straight. We then went and had dinner at the Old Queens Head!     From Kayleigh Errington, aged 10

Hello it is me Robert Searle. I went with my family to see Linda and Olav in Norway for my birthday. We had a great time and met all their family they were all lovely and great fun. We went on Linda's brothers boat. Olav is 5 years old and has HME. They started coming to our meetings in Oxford about 2 years ago and we have kept in touch ever since.     Bye Robert

In Norway at Olav's House

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