
The 2001 Conference

Months of preparation all came to
a head on Saturday 20th October
2001, when the day of the first
ever HMESG Conference
arrived! The conference was a
huge success for Helen and
myself with 86 adult members, 20
children and seven speakers
making the day a memorable
event.
Thank you to everyone who made
the journey to Birmingham. We
had representation from
numerous parts of the UK -
Scotland, Wales, and the North,
South, East and West corners of
England. For some of you the
journey involved arriving on the
Friday and up to two nights
accommodation. I do hope
whatever the distance travelled it
was well worth the effort.
Throughout the day members
took the opportunity to meet, chat
and make new friends. Listening
to the questions being put to the
speakers and the interesting
discussion that ensued at times, it
is clear that members had a lot to
offer on the day. The speakers
themselves were clearly both
intrigued and moved by the wide
range of experience and
openness. The day appears to
have been fruitful for all
involved.
Feedback from the evaluation
forms completed on the day, and
personal notes received
afterwards have been very
positive, with any criticism only
constructive. This feedback is
helpful and will be taken into
consideration when organising
the next conference. We have
picked up several ideas for topics
for future speakers!
Special thanks must go to the
committee and respective spouses,
for their support on the day and
also for their efforts leading up to
the conference. A big thank you
to all the speakers for their time
and commitment which enabled
the conference to achieve so
much. Members deserving of a
special mention and thanks are
Bob Champeau for organising the
video, John and Alison Prewer
for their help particularly at the
start of the day, Deborah
Errington for her help throughout
the day.
Finally to Paul and Dawn Searle's
respective parents who were
always there when needed and
helped the day to run smoothly.
If I have missed personal thanks
to anyone my sincere apologies.
Looking at the excited and
exhausted children at the end of
the crèche session indicates that
they too enjoyed the day and had
a fun time. I know my two
children, Thomas (3) and
Charlotte (18months) certainly
enjoyed themselves, Charlotte's
paintings are still on display on
the kitchen wall and Thomas
recalls his face painting
experience as Spider Man with
much fondness!
And now to the future!
We are planning to hold the next
conference in March or April
2003. Mark the calendar now!
The final date has yet to be
agreed, and will no doubt be
dictated by Easter and the
provision of our first AGM as a
Registered Charity. As numbers
surpassed our expectation on this
occasion and having received
apologies from several members
who had wished to attend, it is
likely that we will need to find a
new venue. We are planning to
keep the venue in the
Birmingham area, as this location
is so favourable for all
communication links.
The date will be advised as soon
as confirmed. In the meantime,
Helen and I look forward to
putting together another
interesting programme and
suitable venue to entice you along
again.
Thank you for your support, it
makes all the hard work
worthwhile!
Sarah Nicholls
HME Video

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11 November 2002: We are sorry but the video is no longer available.
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The programme of the
Conference which was recorded on
the video was as follows:
Introduction
Helen Small
"What is HME?" "Removal of
Exostoses"
Mr T N Theologis, Consultant
Orthopaedic Surgeon, Nuffield
Orthopaedic Centre, Oxford
"Scar Management"
Sophia Mavrommatis,
Physiotherapist, Royal National
Orthopaedic Hospital, Stanmore,
Middlesex
"Correction of Altered Shape"
Professor H Simpson, Princess
Margaret Rose Orthopaedic Hospital,
Edinburgh
"Upper Limb Physiotherapy"
Sue Bainbridge, Senior
Physiotherapist and Hand Therapy
Specialist, Nuffield Orthopaedic
Centre, Oxford
"The Genetics of HME"
Dr T Cole, Consultant in Clinical
Genetics, Birmingham Women's
Hospital, Birmingham
"Recent Advances in HME
Research"
Mr D Porter, Clinical Lecturer
Nuffield Orthopaedic Centre, Oxford
"Scientific Advances in HME
Research"
Mr L Lonie, Research Scientist
The Henry Wellcome Building for
Genomic Medicine, Oxford
Close
Helen Small
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